Category: New NormALS/z

Learning to live after loss; rediscovering me; I am NOT the same.

“Everybody Has a Plan Until They Get Punched in the Mouth.”

This quote jumped out at me yesterday when I was going through my email. It was part of a message meant to inspire fortitude and…

A little over six years ago, my husband and I sat and listened as the neurologist uttered those fateful three letters – A.L.S. and our…

The best thing about being a kid is that part where you really don’t know nothin’ about what’s up. My dad was former military. He…

She never says so. She’s never once said (to me), “I wish my dad was here.” She’s never said, “You’re failing me, and I need…

Today marks three years since Charlie died from ALS. THREE years. How long is that when you think about it? 156 weeks, 1,095 days, 26,280…

My husband was diagnosed with ALS in July of 2013. I remember Charlie telling me that he had a numb patch on his tongue and…

Twenty-five years ago, today, I married Charlie on a beach in La Jolla, California. We were only 21 years old. What in the world were…

Go Shorty, It’s Your Birthday… Except…well…not quite. You would have been 46 years old today. If you hadn’t died at the age of 43. It’s…