It’s a sincere question, truly. No censure or shaming here. I ask because…well…it’s a tough thing for me to do. I never gave myself the…
1 CommentLearning to live after loss...
Category: From a Caregiver’s Perspective
Let’s be real. No one in their right mind ever wants to be a caregiver. It is one of the hardest and most isolating situations known to man. But if you find that circumstances have pushed you into that role, please know that you are not alone.
On the day we went to the E.R., he could only keep breathing by standing and bending over, rocking back and forth to manually keep his diaphragm working just enough to move oxygen into his lungs and keep his body going. Picture using your body to manually operate your lungs much like a blacksmith uses bellows to deliver oxygen to his fire. But we knew it wouldn’t be enough. He wouldn’t be able to sustain it for long.
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No one ever says, “When I grow up, I want to be a caregiver…”
16 CommentsThis quote jumped out at me yesterday when I was going through my email. It was part of a message meant to inspire fortitude and…
2 CommentsMy husband was diagnosed with ALS in July of 2013. I remember Charlie telling me that he had a numb patch on his tongue and…
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